Sara Chandros Hull
Sara Chandros Hull
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Broad consent for research with biological samples: workshop conclusions
C Grady, L Eckstein, B Berkman, D Brock, R Cook-Deegan, SM Fullerton, ...
The American Journal of Bioethics 15 (9), 34-42, 2015
Variability among institutional review boards’ decisions within the context of a multicenter trial
H Silverman, SC Hull, J Sugarman
Critical care medicine 29 (2), 235, 2001
Limitations of direct-to-consumer advertising for clinical genetic testing
SE Gollust, SC Hull, BS Wilfond
Jama 288 (14), 1762-1767, 2002
How physicians face ethical difficulties: a qualitative analysis
SA Hurst, SC Hull, G DuVal, M Danis
Journal of Medical Ethics 31 (1), 7-14, 2005
Direct-to-consumer sales of genetic services on the Internet
SE Gollust, BS Wilfond, SC Hull
Genetics in Medicine 5 (4), 332-337, 2003
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research
HK Tabor, BE Berkman, SC Hull, MJ Bamshad
American Journal of Medical Genetics Part A 155 (12), 2916-2924, 2011
The invisible hand in clinical research: the study coordinator's critical role in human subjects protection
AM Davis, SC Hull, C Grady, BS Wilfond, GE Henderson
Journal of Law, Medicine & Ethics 30 (3), 411-419, 2002
Patients’ attitudes about the use of placebo treatments: telephone survey
SC Hull, L Colloca, A Avins, NP Gordon, CP Somkin, TJ Kaptchuk, ...
Bmj 347, 2013
Patients' views on identifiability of samples and informed consent for genetic research
SC Hull, RR Sharp, JR Botkin, M Brown, M Hughes, J Sugarman, ...
The American Journal of Bioethics 8 (10), 62-70, 2008
Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
YR Rubinstein, SC Groft, R Bartek, K Brown, RA Christensen, E Collier, ...
Contemporary clinical trials 31 (5), 394-404, 2010
The use of medical records in research: what do patients want?
NE Kass, MR Natowicz, SC Hull, RR Faden, L Plantinga, LO Gostin, ...
Journal of Law, Medicine & Ethics 31 (3), 429-433, 2003
Developing cellular therapies for retinal degenerative diseases
K Bharti, M Rao, SC Hull, D Stroncek, BP Brooks, E Feigal, JC van Meurs, ...
Investigative ophthalmology & visual science 55 (2), 1191-1202, 2014
Disclosure of incidental findings from next-generation sequencing in pediatric genomic research
R Abdul-Karim, BE Berkman, D Wendler, A Rid, J Khan, T Badgett, ...
Pediatrics 131 (3), 564-571, 2013
Physicians’ responses to resource constraints
SA Hurst, SC Hull, G DuVal, M Danis
Archives of Internal Medicine 165 (6), 639-644, 2005
Prenatal whole genome sequencing: just because we can, should we?
G Donley, SC Hull, BE Berkman
Hastings Center Report 42 (4), 28-40, 2012
Pediatric biobanks: approaching informed consent for continuing research after children grow up
AJ Goldenberg, SC Hull, JR Botkin, BS Wilfond
The Journal of pediatrics 155 (4), 578-583. e13, 2009
Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants’ relatives
B Chan, FM Facio, H Eidem, SC Hull, LG Biesecker, BE Berkman
The American Journal of Bioethics 12 (10), 1-8, 2012
The limits of disclosure: what research subjects want to know about investigator financial interests
C Grady, E Horstmann, JS Sussman, SC Hull
Journal of Law, Medicine & Ethics 34 (3), 592-599, 2006
Disclosure, confidentiality, and families: experiences and attitudes of those with genetic versus nongenetic medical conditions
L Plantinga, MR Natowicz, NE Kass, SC Hull, LO Gostin, RR Faden
American Journal of Medical Genetics Part C: Seminars in Medical Genetics …, 2003
Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent
J Lowenthal, S Lipnick, M Rao, SC Hull
Stem Cells Translational Medicine 1 (5), 409-421, 2012
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